| apneuvereniging.nl | ApneuVereniging | The ApneuVereniging is a patient association aiming to improve knowledge about sleep apnea among the public and professionals. | Sleep Disorders → Sleep Apnea 14 Social Organization → Patient Organizations 259 | sleep apnea 44 forum 1362 association 8562 research 8967 member 10154 | |
| vmce.nl | Association for People with Constitutional Eczema | The Association for People with Constitutional Eczema provides information, peer support, and advocacy for individuals with constitutional eczema. | Social Organization → Patient Organizations 259 Dermatology → Eczema 22 | eczema 61 peer support 68 online store 905 association 8562 treatment 21203 | |
| schisisnederland.nl | Schisis Nederland | Schisis Nederland is a support and information organization for individuals and families affected by schisis. | Social Organization → Patient Organizations 259 Anatomy & Systems → Neurology 1340 | volunteer 8367 association 8562 | |
| diavaria.nl | Diavaria | Diavaria is a regional association for kidney patients and their families in Hollands Midden, providing support, information, and activities. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | hospital 560 volunteer 8367 association 8562 membership 10442 | South-Holland → Leiderdorp 329 |
| bloedziekten.nl | Stichting Zeldzame Bloedziekten | The website of Stichting Zeldzame Bloedziekten provides information, resources, and support for patients and families affected by rare blood diseases. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | rare disease 12 reference 332 patient 4082 association 8562 event 45199 | |
| nederland-davos.nl | astmaVereniging Nederland en Davos (VND) | The astmaVereniging Nederland en Davos is a patient association offering information, support, and advocacy for individuals with (severe) asthma. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | asthma 58 knowledge 3528 article 6000 association 8562 membership 10442 | |
| hirschsprung.nl | Hirschsprung - Patient Association | The Hirschsprung - Patient Association provides information, support, and a platform for patients and families affected by Hirschsprung's disease. | Social Organization → Patient Organizations 259 Medical Care & Services → Pediatric & Child Health 2121 | disease 285 patient 4082 association 8562 treatment 21203 | |
| rett.nl | Dutch Rett Syndrome Association | The Dutch Rett Syndrome Association provides information, support, and a platform for individuals with Rett syndrome and their families in the Netherlands. | Social Organization → Patient Organizations 259 Disease & Treatment → Neurological Disorders 100 | association 8562 research 8967 | |
| ataxie.nl | Ataxie Vereniging Nederland | The website of the Ataxie Vereniging Nederland (Ataxia Association Netherlands) provides information and support for individuals with cerebellar ataxia, their families, and healthcare professionals. | Social Organization → Patient Organizations 259 Disease & Treatment → Neurological Disorders 100 | healthcare professionals 235 association 8562 research 8967 | |
| alopecia-vereniging.nl | Alopecia Vereniging | The Alopecia Vereniging is a patient association dedicated to improving the lives of people experiencing hair loss and providing support. | Social Organization → Patient Organizations 259 Disease & Treatment → Conditions 174 | alopecia 19 magazine 2182 association 8562 | South-Holland → Leiden 7089 |
| vmdb.nl | VMDB | The website of the VMDB (Association for Manic Depression and Involved Parties) provides information and support for individuals with bipolar disorder and their loved ones. | Social Organization → Patient Organizations 259 Health → Mental & Emotional Well-Being 23704 | toolkit 157 association 8562 care 12338 | |
| heupafwijkingen.nl | Vereniging Afwijkende Heupontwikkeling | The Vereniging Afwijkende Heupontwikkeling (VAH) provides information, support, and a platform for individuals with hip disorders and their families. | Social Organization → Patient Organizations 259 Podology → Orthopedics 1525 | hip 23 meetings 1011 association 8562 | |
| narcolepsie.nl | Dutch Narcolepsy Association (NVN) | The website of the Dutch Narcolepsy Association (NVN) provides information about narcolepsy and idiopathic hypersomnia, aiming to promote understanding and support members. | Social Organization → Patient Organizations 259 Anatomy & Systems → Neurology 1340 | symptoms 558 association 8562 membership 10442 | |
| dsdnederland.nl | DSD Nederland | DSD Nederland is an organization that provides information, support, and connections for individuals with DSD (Disorders of Sexual Development) and their families. | Social Organization → Patient Organizations 259 Anatomy & Systems → Specific Conditions 205 | fund 1063 story 8285 association 8562 membership 10442 | |
| debra.nl | DEBRA Nederland | DEBRA Nederland is a patient association dedicated to improving the quality of life and care for individuals with Epidermolysis Bullosa (EB). | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | peer support 68 anbi 120 donation 5110 association 8562 care 12338 | The Hague → Scheveningen 1625 |
| ehlers-danlos.nl | Ehlers-Danlos Patients Association (VED) | The Ehlers-Danlos Patients Association (VED) is a patient organization established to support and inform individuals with Ehlers-Danlos Syndrome (EDS) and Hybeschronisch Dysplasie Syndroom (HSD). | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | ed 11 diagnosis 1490 association 8562 treatment 21203 event 45199 | Rotterdam → Center 382 |
| caleidoscoop.nl | Caleidoscoop | Caleidoscoop is a national patient association dedicated to supporting individuals with dissociative disorders and their families, providing them with information, peer support, and advocacy. | Social Organization → Patient Organizations 259 Mental & Emotional Well-Being → Mental Disorders 15 | peers 89 mission 1000 association 8562 event 45199 | |
| psoriasispatientennederland.nl | Psoriasispatiënten Nederland | Psoriasispatiënten Nederland is a patient association that provides information and support to people with psoriasis and psoriatic arthritis. | Social Organization → Patient Organizations 259 Skin Conditions → Psoriasis 14 | psoriasis 24 forum 1362 magazine 2182 association 8562 | |
| icpatienten.nl | Interstitiële Cystitis Patiëntenvereniging | The ICP (Interstitiële Cystitis Patiëntenvereniging) website provides information and support for people with interstitial cystitis (IC) or bladder pain syndrome (BPS). | Social Organization → Patient Organizations 259 Men’s Issues → Urology 176 | bladder 19 volunteer 8367 association 8562 | |
| epvn.nl | EPVN | The EPVN is a national association for individuals with an obstetric plexus brachialis injury and their related parties. | Social Organization → Patient Organizations 259 Disease & Treatment → Neurological Disorders 100 | association 8562 membership 10442 | Montferland → Braamt 76 |
| hchwa-d.nl | Vereniging HCHWA-D | The Vereniging HCHWA-D provides support and information to individuals affected by the Katwijk’s disease (HCHWA-D). | Social Organization → Patient Organizations 259 Rare Diseases → Genetic Disorders 48 | disease 285 association 8562 membership 10442 care 12338 | South-Holland → Katwijk 2183 |
| wijnvlek-sturgeweber.nl | Nv WSWs | The website of the Dutch Association for people with a Port-Wine Stain or Sturge-Weber syndrome provides information, support and a platform for members and their families. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | association 8562 member 10154 event 45199 | |
| nederlandsehoofdpijnvereniging.nl | Dutch Headache Association | The Dutch Headache Association (NHV) is an organization focused on headache research, advice, and support for patients and specialists. | Social Organization → Patient Organizations 259 Neurology → Headache 109 | headache 182 publication 2018 association 8562 research 8967 member 10154 | |
| ruginfo.nl | Dutch Association of Back Pain Patients 'de Wervelkolom' | The Dutch Association of Back Pain Patients 'de Wervelkolom' provides a platform for people with back and neck pain and offers information and tools. | Social Organization → Patient Organizations 259 Podology → Musculoskeletal Disorders 15 | choice aid 19 spine 125 back pain 373 pain 1919 association 8562 | |
| ichthyosisnetwerken.nl | Ichthyosis Network Association | The website of the Ichthyosis Network Association provides information about various forms of Ichthyosis, supports patients and their families, and connects them through networks. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | condition 425 patient 4082 association 8562 network 11123 | |
| belangenverenigingpatientenchiropractie.nl | Belangenvereniging Patiënten Chiropractie | The Patient Chiropractic Interest Association (BPC) is an organization dedicated to advocating for the interests of chiropractic patients in the Netherlands. | Social Organization → Patient Organizations 259 Anatomy & Systems → Specific Conditions 205 | chiropractic 184 patient 4082 association 8562 | |
| mastocytose.nl | Mastocytose Vereniging Nederland | The Mastocytose Vereniging Nederland website provides information, support, and networking opportunities for individuals affected by mastocytosis and their families. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | association 8562 research 8967 member 10154 | |
| paragangliomen.nl | NVPG | The website of the NVPG (Netherlands Patient Association for Patients with Paragangliomas) provides information, peer support, and assistance to patients and their families dealing with these rare tumors. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | peer support 68 association 8562 | |
| pvap.nl | Acute Porphyria Patient Association (PVAP) | The website of the Acute Porphyria Patient Association provides information and support for individuals with the genetic metabolic disorder acute porphyria and their surroundings. | Social Organization → Patient Organizations 259 Rare Diseases → Genetic Disorders 48 | attacks 12 diagnosis 1490 association 8562 treatment 21203 | |
| paget.nl | Dutch Paget Patient Association | The Dutch Paget Patient Association aims to provide information and support to patients and doctors with Paget's disease of the bone. | Social Organization → Patient Organizations 259 Essential → Health 91589 | diagnosis 1490 pain 1919 patient 4082 association 8562 | |
| nah-zeeland.nl | NAH Vereniging Samen Verder, Zeeland | NAH Vereniging Samen Verder, Zeeland is a association dedicated to providing support and advice to individuals with non-acquired brain injuries (NAH) and their families in Zeeland. | Social Organization → Patient Organizations 259 Neurology → Brain Injury 48 | nah 77 newsletter 6504 association 8562 member 10154 | Zeeland → Vlissingen 1614 |
| med-sed.nl | Vereniging Med-Sed | Vereniging Med-Sed is a patient association supporting individuals with MED and SED and their families. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | advocacy 357 association 8562 research 8967 | |
| vved.nl | Vereniging voor Ectodermale Dysplasie | The Vereniging voor Ectodermale Dysplasie is a patient association dedicated to providing information, support, and networking opportunities for individuals with Ectodermale Dysplasia (ED) in the Netherlands and Belgium. | Social Organization → Patient Organizations 259 Rare Diseases → Genetic Disorders 48 | sponsorship 2686 association 8562 | |
| niertje.nl | Nierpatiënten Vereniging Tilburg | The Nierpatiënten Vereniging Tilburg is a patient association dedicated to supporting kidney patients and chronic kidney patients in Tilburg, providing information and advocacy. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | dialysis 35 board 3438 association 8562 member 10154 | North-Brabant → Tilburg 8759 |
| reumadepeel.nl | Vereniging ReumaActief de Peel | Vereniging ReumaActief de Peel is a support association for people with rheumatism and their partners. | Social Organization → Patient Organizations 259 Chronic Diseases → Rheumatism 29 | rheumatism 219 newsletter 6504 association 8562 member 10154 | |
| bechterew-nijmegen.nl | Bechterew patient association Nijmegen and region | The website of the Bechterew Patient Association Nijmegen and region provides information and support to patients and their families. | Social Organization → Patient Organizations 259 Chronic Diseases → Rheumatism 29 | association 8562 member 10154 event 45199 | Vleuten - De Meern → Vleuten 574 |
| non-twente.nl | Nierpatiënten vereniging Oost Nederland | The website of the NON – Nierpatiënten vereniging Oost Nederland is a platform for patients in the Twente region, particularly from the Medisch Spectrum Twente and Ziekenhuis Groep Twente hospitals, to support each other, share information, and engage locally in activities related to kidney diseases. | Social Organization → Patient Organizations 259 Diseases → Kidney Diseases 32 | dialysis 35 patient 4082 agenda 4374 newsletter 6504 association 8562 | Overijssel → Twente 2578 |
| cno-scch.nl | CNO-SCCH | The CNO-SCCH association provides information to patients and professionals regarding the diagnosis and treatment of SAPHO and related conditions. | Social Organization → Patient Organizations 259 Diseases → Autoimmune Diseases 31 | diagnosis 1490 association 8562 treatment 21203 | |
| reumatexel.nl | Reuma Patiënten Vereniging Texel | The website of the Reuma Patiënten Vereniging Texel (RPV Texel) aims to inform members and interested parties about rheumatoid arthritis, the activities of the association, and to encourage membership. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | rheumatoid arthritis 21 association 8562 member 10154 | North-Holland → Texel 2208 |
| reumapvhaarlem.nl | Reumapatiëntenvereniging Haarlem en omstreken | The Reumapatiëntenvereniging Haarlem and surroundings is a patient association providing support and information to individuals with rheumatic diseases in the Haarlem region. | Social Organization → Patient Organizations 259 Chronic Diseases → Rheumatism 29 | rheumatism 219 exercise 706 exercises 1058 association 8562 member 10154 education 13471 | North-Holland → Haarlem 8674 |
| pvmt.nl | Patiëntenvereniging Manuele Therapie E.S. | The website of Patiëntenvereniging Manuele Therapie E.S. (PVMT) provides information about manual therapy, coverage for it, and the association itself. | Social Organization → Patient Organizations 259 | coverage 348 manual therapy 1320 method 1505 therapist 1890 patient 4082 association 8562 | |
| rnv-mn.nl | Regional Kidney Patients Association Midden Nederland | The Regional Kidney Patients Association Midden Nederland is a patient organization dedicated to supporting and representing kidney patients and their loved ones in the Midden Nederland region. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | dialysis 35 subsidy 2649 patient 4082 association 8562 | Utrecht → Woerden 2642 |